Cameron's Journey ๐ŸŽ—๏ธ

My son's journey with leukemia

Day 14: iAMP21

Today our journey took a new turn. We recieved the full results from Cameron’s biopsy from Day 5.

Unfortunately, it wasn’t as good as we hoped it would be. The Leukemia cells that are in his blood have a slight genetic mutation called Intrachromosonal Amplification on Chromosone 21, or iAMP21 for short. Basically, when the leukemia cells multiply, they make additional copies of a strand on the 21st chromosone.

It turns out this mutation makes it more resistive to chemo. And this moves his risk level to very high. It doesn’t change our schedule too much this other than we will be adding more intense chemo treatments into the rotation. We will still leave sometime in mid-March and go on to the consolidation stage afterwards. The chances of being into full remission by this time is now about a 50-50 chance. If he is in remission, great we continue as planned in consolidation. If not, we will still continue in considation but with some additional treatments and will check with another biopsy at the end of the 8 weeks.

If at this time he is still not in remission, we will explore different options. Possibility CAR-T therapy, radiation, and bone marrow transplant.

But that is not now. Now, we need to focus on today. And we will. This is all in the Lord’s hands.

4 Comments

  1. Aunt Janet & Uncle Shawn Aunt Debbie & Aunt Vickie

    February 22, 2019 at 8:00 pm

    We are so sorry. If you guys need us we are just a phone call away. We all have our Prayer chains going. Yes it is all in the Lord’s hands. We love you so very much! Jesse, Brandi, Cameron, and Carson.

  2. Linda and Gilby Humphries

    February 23, 2019 at 11:25 am

    Gilby and I are totally committed to total remission n our prayers and will continue lifting Cameron up. Also know that this can be hard on the total family. But we know for sure that God is in control. This has been revealed through Loganโ€™s life and Gladys and David will testify to this. If there is anything you need let us know and remember to take care of yourselves also. God bless.

  3. Terry Weatherford

    February 23, 2019 at 1:35 pm

    I am so sorry to hear he is so sick. My heart and prayers are with your family.

  4. Aunt Jennifer Smith

    February 24, 2019 at 8:52 am

    Thanks for creating this site. I have Cameron on several prayer chains with several individuals asking for updates. We are praying for Cameron with this journey and family to be given the strength needed. โ€œPower in Prayer!โ€

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