Cameron's Journey 🎗️

My son's journey with leukemia

Month: April 2019

Biopsy is back and second part of consolidation stage is underway

Yesterday Cameron started his second 4weeks of consolidation and had to stay overnight at the hospital.

The biopsy came back, and he is at 1 percent leukemia present. This is much lower than when we started, but unfortunately much higher than they want it (<.01%). It looks like we are looking at a bone marrow transplant. This isn’t completely certain yet, but looking more likely.

If that is the path we go, he will finish the 4 weeks of chemo, then we will begin immunotherapy and radiation therapy to get his counts lower for the transplant. The transplant will put him back in the hospital for another 1-3 months. But, after that, as long as everything goes well, he will be cured! So there is a possibility that this could be over by the end of the year.

More to come on all this as we get closer. As for now, hes doing great and enjoying the spring 🙂

Cameron is home :)

Cameron is coming home!

This past week had many ups and downs, and I have been hesitant to post anything because I really wasn’t certain on much. For the past week, Cameron’s fever had subsided and has more energy. His anc number skyrocketed to over 2500, but had since fallen to only 360. He’s also been having a stomachache these past few days, so it’s been hard to get a read from the hospital what exactly is going on.

Today we got the news Cameron will be discharged! And he’s going to be discharged today, like this evening!

We go back in for a spinal tap on Wednesday and next Wednesday for his biopsy. Just to clarify, this discharge really doesn’t have much to do with his leukemia progress, it’s just that he’s healthy enough to leave the hospital. News on the progress will come next Wednesday with the biopsy. But at least he’s home!