Hey everyone, it looks like we hit our first speed bump of the transplant. The bone marrow biopsy came back and initially looked good, but we found some disappointing news in the analysis.
Cameron has been taking blinatumomab (immunotherapy) to target the strand of leukemia he has. While the results showed that it has in fact removed that strand, two new strands have showed up. The mutations allowed the cancer to remain in his system and slightly increased its presence (from .01 to .03 percent). Meaning, Cameron is not in remission as planned and necessary for the transplant.
To combat these new strands, Cameron will be taking a new immunotherapy inotuzumab for the next 3 weeks.
Radiation and bone marrow transplant will follow on the fourth week as long as the new immunotherapy proves successful.
Thank you for all your support and prayers. He is doing fantastic and is full of energy! On the bright side, he gets to enjoy 3 more weeks of summer outside of the hospital 🙂
Just want to give everyone an update on Cameron’s schedule and what is taking place up until transplant.
Tuesday June 18: he will be admitted to the hospital for a dental surgery to remove some baby teeth that have rotted a lot. They are doing this to help prevent any infection that may arise once transplant comes due to him having a very low immune system during that time. They will admit him over night to start on antibiotics and make sure no infection occurs during this time.
Wednesday June 19: he will be sedated again for surgery. This will be for another spinal tap and bone marrow aspiration.
Thursday June 20: he will be released to come home.
Monday June 24: admit to the hospital to begin preparing for transplant.
June 25-29: radiation and chemo. He will be receiving radiation at UC twice a day(once in the morning and again in the afternoon) and chemo everyday. This is full body radiation except for most of his lungs will be protected. Only a small part of his lungs will receive the radiation. They will transport him each time, just a few blocks down to UC for the radiation and then bring him back to children’s. The chemo he is receiving is one that he has previously been on but it will be in a higher dose than he had prior.
Some of the side effects during all of this will be fatigue, nausea and mouth sores. We have been told to expect him to be in quite a bit of pain but they will do their best to keep the pain under control with such things as a morphine drip.
He will have a few days for rest and then transplant will take place either late on Tuesday July 2nd or early Wednesday July 3rd.
At the earliest he will be out of the hospital within 30 days. We have been told to expect more around 60-90 days. It’s all dependent on how his body takes to the transplant as to how long he will have to be in there.
Thank you for your support and prayers. I will keep you posted through the process.